Mum’s Angel

What is it like to be a Mum’s Angel?

I met Chace in April 2022 and was greeted by a wide smile from him, the very first time I walked in. Chace is an endearing and easily excitable boy. He would laugh and giggle loudly all the time. But he could not walk. Chace could only crawl over when he wanted to share his toys with me. This was how I got to learn about Angelman Syndrome. Diagnosed at 18 months old, Chace experienced delayed development, problems with speech and balance, intellectual disability, and occasional seizures.

Although there is an estimated 50% to 70% of Angelman syndrome patients from 2 to 15 years old with sensory processing difficulties, it did not stop Chace from his love of water. He would sometimes spend hours in the bathroom or in the pool, just for that sensory experience.

I spent about 2 days with Barbara and her husband, Japheth on their journey with Chace.

It is hard to imagine what they have been going through. It will be a lifelong journey, but for how long?